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So I'll be trying to fall asleep and when I finally do, my right side will start shaking, I get a headache and wake up..it's weird that I feel all of this. It has even happened at the hospital during a CT scan. The doctor says he saw the pics, called a neurologist, sent the pics to him and said it was nothing. I'm past confused. I go to the doctor at least for my baby girl but I literally don't want to go anymore... I really don't know what to do.
@A MyEpilepsyTeam Member I will try that. Thank you
i have at least 5 drs and 3 hospitals. try another dr at your own hospital. most drs have a "free trial" visit.
you need a 2nd option. i have many drs from 3 different hospitals. i have complex partials and had seizures every 2-3 hours a day. thanks to my team, now i have 1 night time seizure per day.
I’m not a doctor but if it were me, I’d be going to another doctor right away. You need a second opinion and possibly additional testing (EEG, MRI) My seizures affect my entire body but I have heard about ones like what you described. You might have the same problem as me, they don’t know where the seizure starts but I need the meds to control the seizures. Good luck.
@A MyEpilepsyTeam Member I don't know where else to go. No neurologist will take me without insurance.
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