I have a few questions to ask for those with Epilepsy/or Seizure disorders(thank you to those who respond)
1)Do you have to tell professors you have Epilepsy?
My mom keeps telling me to tell my professors that I have epilepsy. She keeps saying "what happens if you suddenly fall and go into a grand-mal"?! Though this is one of my rarer types of seizures I have. Though I really don't want to because, I have been seizure free for quite some time. I don't wear a medical bracelet but, do plan on⦠read more
It's good to tell them. My college has disability services and they took care of me well. They provided accommodations when needed. Maybe your college has this program too.
Richard is right, EMS doesn't always see the ID bracelets. You do need to keep your medical ID/information with you. They do look for it. I've seen EMS treat an epileptic so badly because they thought he was on drugs. It wasn't drugs. He was an epileptic having a seizure, but they wouldn't listen to me... and I'm a RN!! They were just jerks, but the moral of the story is... be sure to have your medical information with you always.
I think it is a case-by-case basis. I used to tell all of the people around me, but I've become much more cautious about it. It does change things especially at work. Now, I only tell people who need to know to keep me safe. Only one person at my job knows I have epilepsy. (I do wear a bracelet from getmyid.com at work because it looks more like a Fitbit and doesn't scream epilepsy all over it. I kind of blends in.) I have created a "safety net" of sorts where I can quickly get the help I need-which does include a rapid response app on my phone... and wearing the dreaded medical alert bracelet. (Check out stickyj online for some cute ones. I have several from them.)
You don't have to tell anyone, but do create a safety plan for yourself and ALWAYS keep your medical information with you (including your medical conditions, allergies, medications, emergency contact and the information for your neurologist and PCP.) I once started having a seizure on an airplane. It was an awesomely horrible experience, BUT having all that info readily available really made a huge difference. I made a small (business card size) medical ID with all my info in it. I ALWAYS have it with me.
You just have to find a way to stay safe while navigating the world independently... it's tricky, but it's possible. :-)
My seizures has caused brain injury and learning disabilities. So I have an IEP or whatever it's called. I always tell my college professors so they are aware of my situation- they are required to give me extra help and time on tests and quizzes
I never told anyone unless I could totally trust them. I told a college about it and made it aware before I got there, they said not problem that they had a clinic. 2 wks later I had a major grand mal outside of the campus, went to the hospital, and was ordered to leave the college due to them not having and RN or doctor on canvas. The 2nd college, (I always had seizures after a new job or with new people, anxiety and fear) with my art class, but accepted right off by all classmates and teacher. The best people I met. I always felt if I tell them right off, they wouldn't hire me, so personally I kept silent. I used to wear a bracelet and a medical necklace but the medics or people never looked at them. They looked in the wallet right off. So I went to Epilepsy Foundation on the internet and they let me type in all my info on a medical card that is seen as soon as they open the wallet. Contacts, blood type, meds, BD, phone No's.