So I have had 2 episodes of twitching and jerking. My diagnosis is nocturnal tonic clonic but for the twitching and jerking I am aware and am able to respond though it seems like way too much work to talk. The first episode of t & j was after a tonic clonic. I was t-ing and j-ing so much that my husband felt he needed to hold me tight. Not the right response at all and certainly not comfortable. Last night I had another round of t-ing and j-ing. Lasts for several minutes I think. Always starts… read more
The twitching makes it hard for me to do a lot. I spill things. Drop things. Afterwards I feel so drained and sore. Almost as bad as a grand mal, but localized to the shoulder and neck.
I get the same myoclonic jerks in shoulder, upper arm, pects. I was told by Neurologist these are a type of seizure. They bite the big one.
I am so sorry that I have no words of advice or comfort regarding switching meds. When my neuros have suggested a switch it send me into a panic and I feel like a drug addict. All the best MikelThor.
Im on carbatrol 800 mg maxed out according to Neuro. I have these myoclonic jerking and twitching issues. Plus seizures. Now getting put on lamictal. Nervous but hope it helps. My Neuro wants to fully switch me over to lamictal off carbatrol. I have been on carbatrol for 15 years. Any advice or history would be appreciated.
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