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This Question Is In Relation To Epileptic Surgery
A MyEpilepsyTeam Member asked a question 💭

I just wonder if after a left temporal lobectomy did people still suffer from seizures long after the surgery?

posted May 2, 2017
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A MyEpilepsyTeam Member

I had a left temporal lobectomy about 25 years ago. Pre-surgery, I had multiple petit mal seizures a day; post-surgery, I was seizure free for 2 years. Seizures returned due to increased stress in my life but only about 3 days a month.

Surgery was well-worth it. I think group therapy or interaction with others who have Epilepsy both before and after surgery would result in a much higher seizure-free success rate.

Wishing you success

posted May 8, 2017
A MyEpilepsyTeam Member

I had a dimilar surgery, though they did not remove the full lobe they did burn out the effected parts via lazer and removed it. I went almost a year without seizure. Now short of 3 years later I am returned to amd average of one or two a month. Not bad, but I sure did like being able to work again, alas life has its own way for me. Wishing you best of luck.

posted May 3, 2017
A MyEpilepsyTeam Member

I am 3 1/2 months postop...so far, so good, however it is not 100% guaranteed. It has a 75-80% chance of being successful. Just stay positive! That's my outlook so far!

posted May 2, 2017
A MyEpilepsyTeam Member

I had my Left Temporal Lobe done too. My seizures never went away, but the frequency of my seizures went, from severe to moderate and mild . Over all I'm happy from going through with the surgery.

posted May 4, 2017
A MyEpilepsyTeam Member

Sorry to rant but in short- I still have them. I had a TLR and DBS installed and before those invasive surgeries my rate was higher over a year later they're still playing with the neuropace and VNS levels. My doctor told me to journal my decreased intensity by only journaling post-ictal for her evaluation. I use 1-aura 2-interictal(conscious) 3- postictal(hey you just had a seizure).

posted May 4, 2017

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