Describe you're surgery on a scale of 1-10 for effectiveness.
I scheduled my surgery date today (august 1st) I'll be going in for my bilateral temporal lobe resection and I'm TERRIFIED. I'm doing the cranial monitoring at the same time and then doing the surgery once that is complete just to get it all done and over with at once. But any and all advice on how you felt, before, during, after would be helpful!
I had my RNS surgery last Feb it was really hard. I have had headaches everyday, head pain. They keep changing my meds uping the dose then lowering. Its going to be a long road. Most of the time I think this is just my life forever. Sometimes I'm hopeful but it's rare
Hey,
I had brain surgery in August last year to correct the Epilepsy and the damage it was causing. I've been seizure free for just over 10 months now. If you feel that the risk is worth it, which I'm sure you will, go for it. It's helped me, and a few others I know that have had the same procedure. If you wish to ask me questions, I'll be happy to as many as I can.
@A MyEpilepsyTeam Member
With your headaches , meds and dosage levels Changing , are your seizures better under control than before?
I had surgery in 07.. I'm not going to put it on a scale, but I would probably not do it again...
I rate my surgery, a 8 . It all went great. Even the staff were Awsome. When going through with this, I was hoping that I either be seizure free or hope that I can control my seizures better with my meds.
Although non of those two things happened, but my seizure frequency has reduced which is also plus.