So today I had my meeting with the brain surgeon to speak about the surgery I'd have.
After all the gory details me and my mum fired our questions at him and he said it was would an 80% success rate, 1-2% rate of infection etc, 6-8 hour operation (!) and 3 month recovery. Etc
The major worry from the surgeon was the loss of language I may get as the operation would be on my left side. But he was keen that as we are doing this procedure whilst… read more
This was such a difficult decision for me. When I think about my seizures I think about them in terms of a tiny part of me (memory, spelling, diction, whatever) being compromised by each one. If this is true then perhaps the surgery (with the 80% success rate) could get rid of the part of my brain that causes this problem and prevent my situation from getting worse. Also, if you have the surgery you still might have to take meds. BUT.....If I don't do it, I have to deal with the side effects of my meds and that eats away at me as well. Sigh........ in the end, I decided not to do it but I was 48 at the time. Will be thinking of you.
I've had the left temporal lobectomy.
I gained a lot of energy. [In fact I had so much that right after I got out of the hospital I made my mom take me to my volunteer job and my boss was completely stunned to see me.] That was back in 2002 I haven't had a seizure in almost 15 years!
I'm very thankful that I was able to do it. Speech wise (as you can probably tell) I'm not at a loss for words like I was when I had the lobe in.
For myself , I also went though the Left Temporal Lobe brain surgery. My after results from the surgery reduced the frequency of my seizures. I went from severe seizures down to moderate and mild seizures. Although my seizures aren't 100% controlled.
You may also want to ask your Dr. Or surgeon if they are going to map your temporal lobe , before the surgery.
Keep in mind, doing this surgery doesn't garrantee that it's going to cure you or make you seizure free. But it is possible ( being seizure free ) .
I had similar surgery. It's amazing how they do it but they can keep you talking through the surgery. That way they will know if their actions are affecting your speech. I'm not sure what happens if that starts. Ask the surgeon or specialist nurse. The best thing you could do after the surgery is rest. This will give your brain chance to heal. I couldn't due to family which the drs said didn't help & may well have contributed to fits in the first few months afterwards. Let your mum pamper you 😉 also, a higher chance of success if you have it when your brain is still young. You may have depression for a short time afterwards as well due to it being your temporal lobe. Check with the drs. It's just temporary if so. Brains are amazing things! Good luck. I wish I'd had that option when I was young. It wasn't one back in the dinosaur years 😉 xxx