Hey alll, so I had a nocturnal seizure last night according to my tongue and my pillow; also explains today's lack of energy.. but I was wondering does anyone see floating things or just look like you have ate magic mushrooms cause your tryin to catch things that aint there? Or just things out the corner of the eye? I'm not a complete utter nutter bread and butter but I swear there's things there.... anyone... if so do you know what it means??
I already got some feedback on something similar to this, but I'm going to put it all out there now because I've done a TON of research on all of this.
Would it help you to have a watch (a good looking one, not crappy. Maybe even custom) or an app on your phone that you could program to fit your needs after a seizure?
I often have seizures alone and I'm working with a couple developers to bring this to fruition so having a seizure alone isn't so traumatic. I'm building a watch that has the… read more
No watch for me
Has anyone ever had a seizure during a flight? I am thankfully feeling a lot better now I was getting an Ora was terrified but didn't have one.
Hi, my adult daughter had a tonic clonic seizure on a flight from Maine to San Francisco. NOBODY even seemed to notice, let alone offer to help! It was pretty mind boggling! Luckily she did have her… read more
I'm wanting to travel to South Africa but my parents are refusing me to go due to my epilepsy. Any tips for flying long distance?
Make sure you have all your medication and any paperwork required from your doctor. Also, I always recommend (and have) extra travel insurance, as the normal travel insurance won’t cover epilepsy. The… read more
How do you guys handle your side effects for your medication if it makes you drowsy/ just not yourself. Lately I feel like I'm just not on top of things. I take vitamins my neurologist told me to take and tthey work pretty good. Is there any otc medications or certain vitamins or anything at all that help you guys with your side effects?
As you say, difficult to be consistent but it does help!
I'd love to pick your brains on why you decided to do so and how your openness has been received. I'm committed to helping people with epilepsy who now hide it to "come out of the closet." Knowing your experiences could give me the education I need to succeed. Thanks!
It's definitely tough sometimes, but I try to be empowered by my condition. I know not everyone has to deal with chronic illness or disability, but for those of us who do, take pride in the strength… read more
My auras take me to thoughts that are unusual and often lovely. I don't harness them as an inspiration to create something meaningful, though. Is this a missed opportunity? In a larger context...
Do you consider yourself creative or not? If so, have you always thought you were (even before your seizures began) or is it something you began enjoying after you had your seizure? What do you think are the reasons? Is there anything you know for sure re: the relationship between epilepsy and… read more
Yes I think I am, my opinion
Can you live by yourself & have a response dog? What other options are there?? I need answers not hugs.
Hugs are nice but answers are what I am looking for.
If you have the confidence to living , working and managing yourself , then you don’t need a care giver.
Do you view that you had a good life prior to Epilepsy starting later in life? And do you feel that you are cursed, challenged or simply frustrated by life with all of the seizures and/or all of the side effects of medications, surgeries, implants, etc.? Do you feel that others have ceased judging you as an individual but rather only see you as an Epileptic -- thus in some way abnormal? And for those of you who have had Epilepsy since you were a child and have never had any form of reduction… read more
I see myself to be a patient, understanding, honest, and thankful person. For epilepsy willing to wait patiently for success to be discovered. Understanding it could be worst. Honestly say it can… read more
I'm so frustrated I want to cry. I have searched and searched for help to do some paperwork for insurance. It's too complicated for me to comprehend, I can't process it. I need someone to break it down so simply, and do the paperwork too cause I'm forgetting what was said two minutes ago cause I just took in so much more information. I keep getting responses like here I'll send you an email with a lot of great resources you can use that are available to you. (Rant) that right there drives… read more
How about going to your local hospital. Or make an an appt to see your pcp to ask for guidance and direction.
Good luck hope you can put the Kleenex box away soon.