Is There Anyone On Here Who Has The RNS Implant. I Got Mine Put In Last April 2016 & Was Wanting To Know If Anyone Felt Any Side Affects? | MyEpilepsyT

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Is There Anyone On Here Who Has The RNS Implant. I Got Mine Put In Last April 2016 & Was Wanting To Know If Anyone Felt Any Side Affects?
A MyEpilepsyTeam Member asked a question 💭
posted March 27, 2017
•
Be the first to like/hug
A MyEpilepsyTeam Member

I had a very unusual situation happen after I had my RNS implant put in Oct. 5,2016. It seems like over the later part of November, and early December I felt very depressed. My wife said it was like I had a personality change. Then around mid December 2016 I started having headaches and was taking Tylenol to help. I saw my Dr. the end of December 2016. He ordered a CAT SCAN, he saw something unusual so he admitted me to the hospital for more testing. It was found out that I had Bacteria growing in my Nervous track somewhere on my body. I had to have the RNS removed, then I was told that bacteria was found growing (slow growing) on one of the RNS Leads. I was treated with IV Antibiotics for 10 days. It cleared up and then I was released. The Dr. Wanted to put it back in, I refused. I have Complex Partial Epilepsy, and it has been pretty good. I'll always have seizures, started age 12, now 57. I have Tuberous Sclerosis which is the cause. My seizures are mostly starring spells, or confusion.
Good Luck on your RNS.

posted April 1, 2017
A MyEpilepsyTeam Member

Headaches and for me using three steps for them 1. Pressure with hands 2. Ice pack 3. Acetametafin. 6 pills is the daily max and many times the first two will do the trick

posted March 27, 2017
A MyEpilepsyTeam Member

Thank you! Mine is an RNS implant though. It's a device which is actually placed inside the skull with leads connected to the specific area from which the seizures occur. Thank you though. Hope you have a great day!

posted March 30, 2017
A MyEpilepsyTeam Member

(Phone number can only be seen by the question and answer creators)=7846//www.VNSTherapy.com//www.facebook.com have information and how to deal with it are 3 sources of information about the VNS.

posted March 27, 2017

Related content

View All
Has Anyone Tried Cefaly?
A MyEpilepsyTeam Member asked a question 💭
Does Anyone Else Have NES/ Dissociative Seizures?
A MyEpilepsyTeam Member asked a question 💭
What Dog Breeds Or Cat Breed Are Good For Epilepsy
A MyEpilepsyTeam Member asked a question 💭
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of use, and our Health Data and Privacy policies.
Already a Member? Log in