Does Anyone Undergone Surgery For Epilepsy? What Is Your Experiences And How Are You Doing After It? | MyEpilepsyTeam

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Does Anyone Undergone Surgery For Epilepsy? What Is Your Experiences And How Are You Doing After It?
A MyEpilepsyTeam Member asked a question 💭

I'm suffering from Partial complex seizure for many years now and medication failed to control it so, even it sound a little scary for me I considering to undergo Right temporal lobectomy as advised by Neurologist.

Does anyone undergone Surgery of any kind for their seizures? How did you prepared yourself before the surgery? How are you doing after the surgery? Does it helps to control your seizures to be seizures free?

posted March 17, 2017
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A MyEpilepsyTeam Member

Cecilia I had right temporal lobe surgery last year and I just celebrated 11 months seizure free I had to go through a lot of differ tests and worried if I would be approved. Then when the Dr said it was a go I was so nervous and excited all at once. The only support I had was family and friends. We were all silly about it so I would stay calm. It is a serious surgery but your outlook going in makes a huge difference

posted March 20, 2017 (edited)
A MyEpilepsyTeam Member

I had a right temporal lobe labectomy. I was in the hospital for months back in 1994. The surgery totally eliminated all 20-30 partial complex seizures per day. The testing did take months at that time. There is hope. All the best. @wendall

posted March 19, 2017
A MyEpilepsyTeam Member

Hi! Great questions! I am now 8 weeks postop from a left craniotomy for left mesial temporal lobe epilepsy. So far I am doing well...knock on wood! I did lots of testing preop so they could map out my brain to be sure they would avoid resecting where certain things...language, memory, etc. occur. I was back to work as an inpatient Physical Therapist 6 weeks postop. I did have a laser ablation prior to the crani but it didn't work, however, so I had the crani. My surgeon told me if I am seizure free for between 1-2 years it means it has worked. I will likely wean my Keppra and Vimpat in 6 months to a year. That will be up to my Neurologist.

posted March 17, 2017
A MyEpilepsyTeam Member

Your welcome and salamat for being here Cecila

posted March 20, 2017 (edited)
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, thanks for that advises. I will make sure that I'm going to enough testing and that the surgeon have a good skills and experiences to perform the surgery. Take care and God bless you!

posted March 19, 2017

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