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I think that I am, i know that there is not a cure for, but I I've accepted mine and it does make it easier knowing what I have to deal with, what do you think and your thoughts about it?
Learned to live with it. It's great to hear this is being treated just like anything else in life from birth. LEARNED TO LIVE WITH NOT CONTROLLED TO LIVE WITH!
What do you do to pass the time? Maybe you are unable to drive and stuck at home.
Do you find it keeps your spirits up.?
What's your hobby?
I miss walking and taking the bus to the mall. I really wish I had been able to visit the city/state I live in before I cam here. I would not have moved here. The only sideways and buses are downtown… read more
How did your all's doctors find out what kind of seizures you have?
I as well! In fact, I recently had a 24 hour EEG done. My doctor realized I have 7 types of seizures. Which helped me take a look at myself and life.
I would like to see what would people do and they see somebody that don't matter it's a family member or a co-worker or someone that they don't know that was having a seizure when would you do would you being helping them out or would you just leave and just leave them there like that because there's a lot of people that do that that don't help other people that is going through the epilepsy and they don't know how does it feel and what's happening or going on and I don't want any one of you… read more
Also turn them on their side and don't put anything in their mouth
If you miss your morning dose do you take it when you realise or do you wait until your next dose is due?
I am getting my Epidiolex by FedEx next day Air. Once I had run out and should have taken it at 9 AM. I got it later, say 10:30. The Doctor told me to take it later that evening as well.
The new landlord increased the rent now it's an extra $300 / month. I contacted the food shelf I would go to time to time to help with bills when I could drive. It's a drive through only set up. You wait in line along the building, pull into the parking lot when a spot opens, they give you paperwork of their current inventory and you fill out what you would like, they bring it to you and you're off. I've left them messages asking what do I do now that I can't drive and the transportation… read more
Ask for a ride if available, bus is an option, but I walk mostly, my opinion,
Do you all find that you keep up with your drug interactions better than your doctors?
@A MyEpilepsyTeam Member I agree with you. My next project is going to be putting together my own booklet to help me and the doctors current. And living in that real world. 🌎
Do you view that you had a good life prior to Epilepsy starting later in life? And do you feel that you are cursed, challenged or simply frustrated by life with all of the seizures and/or all of the side effects of medications, surgeries, implants, etc.? Do you feel that others have ceased judging you as an individual but rather only see you as an Epileptic -- thus in some way abnormal? And for those of you who have had Epilepsy since you were a child and have never had any form of reduction… read more
I see myself to be a patient, understanding, honest, and thankful person. For epilepsy willing to wait patiently for success to be discovered. Understanding it could be worst. Honestly say it can… read more
How do you put up with it all your life with seizure
I just started having seizures March of 2022 it's hard but Thank God I have my Daughters and Granddaughter to help every morning Our Father wakes me up I'm Grateful that I have help and Blessings… read more
How do you define normal? What is your normal now you have/know someone with Epilepsy?
why be normal? for me normal is; depressed, angery and alone.