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I Have Invisble Seizures

I Have Invisble Seizures

How can let ppl now THIS?

A MyEpilepsyTeam Member said:

Your probably having a Peti Mal or Absence seizure. That can do that to you Libby

posted about 5 years ago
A MyEpilepsyTeam Member said:

Nonconvulsive status epilepticus (NCSE) or a state of seizures without convulsions are considered invisible seizures. These types of seizures are under-diagnosed because of the subtle symptoms and necessary EEG to confirm it. Before tonic-clinic seizures in my sleep were witnessed, stares and black-outs were not recognized as seizures. Many seizures are not easy to recognize by primary physicians because they are not around patients long enough to consistently see and comprehend the many different invisible seizures.

posted over 5 years ago
A MyEpilepsyTeam Member said:

When I have some of my seizures, I may go into a blank stare , vocalize. The doctor told me there day time seizures.

posted over 5 years ago
A MyEpilepsyTeam Member said:

Right.. it seems as if doctors dont put our own opinions about our own selves into consideration. We know something occurred. I will give an example of my own self... I woke up in bed with my shoes on one day. That shocked me, I sat up and said to myself, I know I take my shoes off before naps. And I tried to rewind my memory to the last place I was. I remembered I was outside reading a book. I looked outside and my book was still on the table. So the time frame from point A to point B I was unable to recall. But stuff like that happens. Though memory of the stuff in between does not exist. That's one reason why I am trying to find a way to get a service dog. I don't have any help from any Doctors. and only have been rejected from family. Could anyone guide me in getting a service dog??

posted over 5 years ago
A MyEpilepsyTeam Member said:

The stares and black-outs can happen at any time. They're easier to notice during daytime activities. Have not been told about vocal activity during mine. Some people get upset, because I have no idea what they were saying. It takes a little time, seconds usually, to recall place and activity. Damon, I don't have any memory a medical professional saying day time seizures, but it could've been said before or during a seizure and this mind wouldn't know. May God be with you 😊

posted over 5 years ago
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