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Does Anyone Else Experience Paranoia?

Does Anyone Else Experience Paranoia?

I know I already asked about hallucinations and there was a few answers. I've talked to my neurologist, he doesn't think the hallucinations are caused by the med I'm on but he's changing the med anyway because it isn't fully controlling the seizures possibly (?) (I maybe having them in my sleep, we don't know for sure) but better safe than sorry. But, even before the med change I was experiencing paranoia, not like I was paranoid I was going to have a seizure, but like legit paranoia at night… read more

A MyEpilepsyTeam Member said:

Can't say paranoia, have at times awoken, thinking there was a noise, or movement,
Have up til last year been on my own, now since surgery not💕
For me I think my paranoia or weird sensations at night were firstly, maybe sleeping seizure activity??

Also have found best to talk to a specialist in my case, or family, to find out more of my own childhood history,
Ie, did I get frightened by sisters or family I my bedroom, or have people come into my room frequently whilst I slept at night,
May not have effected me as a child, but memories etc related to people in bedroom can still haunt or scare me as an adult.

Also, I was, have never been consciously aware of my seizures, there have been times when I thought I had someone in the house, things moved etc, now I know I did a lot of physical movement, cleaning, walking etc in my seizure state, so this sense I think was being in a partial conscious state whilst in seizure, Henderson seeming as though a second person of sort in house.
Please accept this my own self discovery.
Bron💕💕💕

posted over 5 years ago
A MyEpilepsyTeam Member said:

I don't really like joking about it. It sincerely freaks me out. Especially when wake up thinking you're being possessed by a demon, sorry that I'm not light hearted on the subjected but if you're not being helpful please don't comment.

posted over 5 years ago
A MyEpilepsyTeam Member said:

Ok, so update and has been confirmed by tests I have narcolepsy in addition to my epilepsy. The narcolepsy was/causes my hallucination. I was misdiagnosed with psychotic depression which was dangerous considering I didn’t have all the symptoms of that diagnosis

posted about 1 year ago
A MyEpilepsyTeam Member said:

Me too!

posted about 1 year ago
A MyEpilepsyTeam Member said:

It was my neuorologist that didn't believe that it cause this particular side effect. He listens to my concerns though, and believes in side effects and has switched my meds before due to side effects that I told him about. He was just doubtful because I was on the med for so long without having hallucinations, oh and I guess I should mention that my younger sister experienced some to a lesser degree but doesn't have epilepsy so in this case I agreed with my neurologist. He is very thorough and listens intently. I get what you're saying there are some not so good neurologists out there but j trust mine. My mom was skeptical about me seeing a psychiatrist as well but seems to be ok with it now and based on everything I went through the diagnosis (depression) seems to be right. I have experienced more than just epilepsy and still have a hard time coping with it all. I just think that it's important for people to know that hallucinations can be linked with depression as a lot of meds have a side effect of depression/ I feel like there's some people who experience severe depression when having epilepsy so if they're having hallucinations they're not crazy or anything. It was such a relief for me because I was scared to death at night not knowing what was going to happen

posted over 5 years ago
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