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Does Anyone When Having A Seizure Pull Out There Shoulders Or Bite There Tongue?

Does Anyone When Having A Seizure Pull Out There Shoulders Or Bite There Tongue?

A MyEpilepsyTeam Member said:

I’m surprised I can still talk. My tongue has been through the ringer. Never pulled my shoulder but I’ve hurt myself in all sorts of ways.😝

posted 7 months ago
A MyEpilepsyTeam Member said:

Never pulled out my shoulder , but I do have thousands of bites all over my tongue from seizures.

posted over 2 years ago
A MyEpilepsyTeam Member said:

I have bitten my tongue during a seizure. I have never dislocated my shoulder before.

posted over 2 years ago
A MyEpilepsyTeam Member said:

I understand. Sometimes they tell you nothing. I never found out until recently that the EEG s don't show anything about the seizures. I'm 54 and they've been running EEGs on me since I was 8. People have pulled and tugged on my head, I've had over 2 dozen weekend seizure sessions at the hospital prepping for brain surgery. It's infuriating what they don't tell you
I think the guy I'm with now doesn't do that because he was the one who told me about the tests.

edited, originally posted over 5 years ago
A MyEpilepsyTeam Member said:

When I went to my new neurologist the other day, she looked at my tongue and said it has scarring from bites (possibly from childhood). She said tongues can look like lettuce on the sides from bite scars. I never knew that. My old neurologist never explained much, and I am not sure I remember him looking in my mouth.

posted over 5 years ago
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