I'm 35 years old. I have had visual auras my entire life, these auras were associated with migraines and epilepsy was never in question.
2 years ago I had my first grand mal seizure. It began with a very distinct visual aura typical to those I have always experienced - blind spots, tunnel vision, looking through running water etc. The only difference to my auras this night was pins and needles up my right arm which led up to my right side of face tongue and lips. I then went into… read more
It all varies plus s everyone is different. For a lot of us, it never changed.
If you were to have Brain 🧠 Surgery, it’s very possible for our seizures to change. I had brain surgery in 98’ and my seizures change some. I use to have Grand Mal Seizures along with Peti Mal and Complex Partial Seizures. Now I only have Complex Partial Seizures and Peti Mal Seizures.
Changing meds can sometimes change the seizures . Then there are those who are sensitive to when they are in a different climate ,different environment and even weather change can trigger in someone’s seizure patterns.
I still get auras when I have a seizure.
I have the tunnel vision, view through running water, no eye hand coordination, typing becomes gibberish, I might wander away from the ranch with no memory, panic and/or paranoia, walk looking like I'm drunk, speech problems, etc. I only know about some of these because I was told what I was doing. Extreme heat makes it worse, chronic pain gets worse. If someone helps me to lie down and gets me in the AC it might stop the onset.
Symptoms have gotten worse over time. Recovery can take a day or week of sleep with no memory. I have not qualified for Medicaid so no insurance which means I can't see a neurologist. All causing extreme depression.
I use to get abdominal auras since I was 2. I had complex partial sezuires until my 16 th birthday which is when I had my first grand mal. As I got older I stopped getting auras and would never anticipate a sezuire coming on.
What has also changed is how I feel after the sezuires. The recovery period lasts a lot longer now and my speech and vision take a while to come back.
You are right, it's really scary when you don't know it's coming.
One option to consider since you don't get auras is a sezuire response dog guide. I'm not sure what resources you have where you live but in Canada we have a foundation that does this type of training. Mine has impacted my life tremendously. I have more independence, freedom and most of all I feel safer!
My seizures changed when I had an operation to be rid of seizures. Although mother frequency of my seizures has reduced significantly, I no longer get warnings and really only know I have had a seizure after the event. Prior to my operation I did get warnings that a seizure was coming.