I have not been on to provide any answers and words of support for my team on the friends on my team because I cannot understand myself after the time in the hospital. The Tegretol/Carbamazepine is gone and has been replaced with Keppra, but I don't understand what are side effects of Keppra and what are simply after effects of the EEG LTM. Do you have any suggestions on finding out which?
When I hear people say seizure free for 1 day or 2 days 2 weeks etc. The longest I had was 6 months. Its what I call my new normal.
@A MyEpilepsyTeam Member
It’s hardship to say . Since we all react differently to the medications, it’s not easy to answer your question. You may be one who won’t have trouble keeping your seizures… read more
So after reading I've read many say they were out or doing something they had a siezure and kept doing what they were doing. Other than now knowing that aoras don't think I'm spelling correctly, are a siezure I guess..... If not what does everyone mean? They weren't flopping on the floor..... I now that's not the only type but I'm still confused.
Thanks for helping me try to understand. I figure asking here directly would help me more than a million things on the G search engine
Thanks… read more
People have different types of seizures
I suffer from myoclonic seizures along with absence seizures and clonic tonic seizures
Myoclonic tonic seizures I can have constant uncontrol able muscle… read more
I've been on it for years and my seizures keep getting worse. Now I'm having multiple forms of seizures instead of just tonic clinic like I had originally. And Dr keeps upping my dosage instead of switching meds even though I've requested it repeatedly. I sought out a different Dr and the new one kept me on same med (zonisimide) and dosages and seizures keep getting more frequent and worse and are now coming in clusters that sometimes last for a week!. Only thing nee Dr did was add Nayzilam… read more
Hi My name is Christopher Rand and I ve had Epilepsy since I was 3 and I have had it all my life and I am now going on 55 years old.
I was in medically induced coma back in 2020 and I was in that… read more
Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?
I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more
Something some said got to me. Not all forms of epilepsy make tou loose consciensness. I am always alart and and aware of several of my triggers. My sezuires are either absent, mind staring or simple/conplex jerks (like a cold chill).
I have complex partial seizures. My neurologist and I have talked about my license as I have brought it up. He sees no reason to revoke my license and my diagnosis does not require them to be.
Anyone else still have their license?
I am hoping for my first year. It's been 10 months.
Does anyone who is single find it hard to find that special someone who understands you and what living with epilepsy is like.
It seems to me that as soon as you say epilepsy people run a mile.
Maybe it's me or the fact they don't understand it or scared?
I had some bad relationships, before I found my husband of 18 years. Don't give up. I almost did. I was 40 when we walked down the aisle. Yes we lived together first, he is 7 years younger and I… read more
Hi, I am scheduled for a video EEG at the end of March. I wish it wasn't so far out because it's causing me some anxiety. What could the results be, and what will they do after that? Adjust meds, recommended surgical procedure or surgery? For those that had it, what did they determine and what happened next? Thank you.
Hopefully, if you do not already know, it will let you know if you have any nocturnal seizures along with verification of the types of any of the witnessed seizures you have had. And provide your… read more
1 After a seizure, can you get up and continue your usual work?
2. Has anyone had any side effects from epilepsy medication?
Generally no. And YES to your 2nd question
When did you get it?
1950s
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2001