how long has someone stayed seizure free after finding the right med combo and epilepsy | MyEpilepsyTeam

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Top 10 Search Results for "how long has someone stayed seizure free after finding the right med combo"

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What Can I Provide My Team When I Am More Confused After EEG LTM Than I Was Before?
A MyEpilepsyTeam Member asked a question 💭

I have not been on to provide any answers and words of support for my team on the friends on my team because I cannot understand myself after the time in the hospital. The Tegretol/Carbamazepine is gone and has been replaced with Keppra, but I don't understand what are side effects of Keppra and what are simply after effects of the EEG LTM. Do you have any suggestions on finding out which?

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A MyEpilepsyTeam Member

When I hear people say seizure free for 1 day or 2 days 2 weeks etc. The longest I had was 6 months. Its what I call my new normal.

Those Who May Have Been On Vimpat And Are No Longer, How Did You Do With Transitioning To A New Med
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
It’s hardship to say . Since we all react differently to the medications, it’s not easy to answer your question. You may be one who won’t have trouble keeping your seizures… read more

How Do You Know You Had A Siezure?
A MyEpilepsyTeam Member asked a question 💭

So after reading I've read many say they were out or doing something they had a siezure and kept doing what they were doing. Other than now knowing that aoras don't think I'm spelling correctly, are a siezure I guess..... If not what does everyone mean? They weren't flopping on the floor..... I now that's not the only type but I'm still confused.

Thanks for helping me try to understand. I figure asking here directly would help me more than a million things on the G search engine

Thanks… read more

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A MyEpilepsyTeam Member

People have different types of seizures
I suffer from myoclonic seizures along with absence seizures and clonic tonic seizures
Myoclonic tonic seizures I can have constant uncontrol able muscle… read more

Does Anyone Now Or Have You Ever Taken Zonisimide? What Do/did You Think? Did It Help?
A MyEpilepsyTeam Member asked a question 💭

I've been on it for years and my seizures keep getting worse. Now I'm having multiple forms of seizures instead of just tonic clinic like I had originally. And Dr keeps upping my dosage instead of switching meds even though I've requested it repeatedly. I sought out a different Dr and the new one kept me on same med (zonisimide) and dosages and seizures keep getting more frequent and worse and are now coming in clusters that sometimes last for a week!. Only thing nee Dr did was add Nayzilam… read more

A MyEpilepsyTeam Member

Hi My name is Christopher Rand and I ve had Epilepsy since I was 3 and I have had it all my life and I am now going on 55 years old.

I was in medically induced coma back in 2020 and I was in that… read more

Do You All Feel That Our Medications Loses Their Effectiveness After A Few Years?
A MyEpilepsyTeam Member asked a question 💭

Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?

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A MyEpilepsyTeam Member

I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more

Do You Still Have Your License?
A MyEpilepsyTeam Member asked a question 💭

Something some said got to me. Not all forms of epilepsy make tou loose consciensness. I am always alart and and aware of several of my triggers. My sezuires are either absent, mind staring or simple/conplex jerks (like a cold chill).

I have complex partial seizures. My neurologist and I have talked about my license as I have brought it up. He sees no reason to revoke my license and my diagnosis does not require them to be.

Anyone else still have their license?

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A MyEpilepsyTeam Member

I am hoping for my first year. It's been 10 months.

Relationships And Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Does anyone who is single find it hard to find that special someone who understands you and what living with epilepsy is like.
It seems to me that as soon as you say epilepsy people run a mile.
Maybe it's me or the fact they don't understand it or scared?

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A MyEpilepsyTeam Member

I had some bad relationships, before I found my husband of 18 years. Don't give up. I almost did. I was 40 when we walked down the aisle. Yes we lived together first, he is 7 years younger and I… read more

Video EEG Results
A MyEpilepsyTeam Member asked a question 💭

Hi, I am scheduled for a video EEG at the end of March. I wish it wasn't so far out because it's causing me some anxiety. What could the results be, and what will they do after that? Adjust meds, recommended surgical procedure or surgery? For those that had it, what did they determine and what happened next? Thank you.

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A MyEpilepsyTeam Member

Hopefully, if you do not already know, it will let you know if you have any nocturnal seizures along with verification of the types of any of the witnessed seizures you have had. And provide your… read more

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Said Effect And Medication
A MyEpilepsyTeam Member asked a question 💭

1 After a seizure, can you get up and continue your usual work?
2. Has anyone had any side effects from epilepsy medication?

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A MyEpilepsyTeam Member

Generally no. And YES to your 2nd question

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

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A MyEpilepsyTeam Member

2001