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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Disability

Disability

just curious: does anybody know how much an average person could receive for disability? i can't get a job due to the frequency of my seizures and even if i could, i can't keep a job. i've lost 3 jobs because of this affliction. God knows how many more brain surgeries i'll have and since my epilepsy is slowly debilitating who knows how much more worse it's going to get?

A MyEpilepsyTeam Member said:

It honestly depends on how long you've worked. My father is on disability due to work incidents and he makes decent money, but he worked 30+ years as well. It used to be you had to have worked a total of 5 years minimum to qualify for disability. They change the laws every now and then. My partner has never been able to work so he does not qualify for disability but receives SSI instead. He gets $733 a month and that's it as our state does not pay anything additional as that's considered enough to live on. He does recieve Medicaid as well, and a small amount in food stamps, but that's about it. When he lived in New York, he recieve do about $500 a month from the state to account for the cost of living, etc. SSI is very strict. If you work, once you make $85, they start taking $1 off your pay for every $2 you make. If you get married or are married, and your spouse makes over $1100 a month gross, you will lose your SSI because you exceed the maximum limit allowable for a married couple with SSI. If you're both on SSI, your checks will be reduced until you both get a total of $1100 a month. It's quite complicated and you really have to research it. Disability usually takes years to get and requires a lawyer and you're normally deni d at least 3 times. My dad nearly lost his house waiting for the 5 years it took to get his started. It's a long and complicated process so be ready. Good luck to you.

posted almost 6 years ago
A MyEpilepsyTeam Member said:

You can go www.socialsecurity.gov and they have a way to look up what you would get. You can also fill out all the paperwork on-line before you have the face to face interview.

posted almost 6 years ago
A MyEpilepsyTeam Member said:

They will look at how much it affects your life both at home and outdoors they decide what rate you are entitled to you most likely will be refused the first and maybe even second time you apply but don't give up if they do this send a letter when you reapply telling them how much it affects your life in every way

posted almost 6 years ago
A MyEpilepsyTeam Member said:

depends on your state. Wisconsin and Illinois have similar but legally not identical laws (goes without saying, of course), Talk to D.V.R. the Division of Vocational Rehabilitation for the state. I do not remember where all of took place. (the Thompson Center in downtown Chicago.)

posted almost 6 years ago
A MyEpilepsyTeam Member said:

I was just denied as usual.

posted almost 6 years ago
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