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Has Anyone Use Or Are Useing Phenobarbital For Seizures? And Have You Heard About Other Use Of Phenobarbital?

Has Anyone Use Or Are Useing Phenobarbital For Seizures? And Have You Heard About Other Use Of Phenobarbital?

A MyEpilepsyTeam Member said:

I was taking Phenobarbital in Jr. High age 14. The side effects were very bad with me. I was always tired, and always acted out of it. It seems like my neurologist at the time even tried "Escabarb" for a short time also. It is a long lasting Phenobarbital type medicine. I couldn't stay on this very long. Maybe 6 to 8 months I was on it until an evaluation showed it was effecting my mental attitude. Be careful !!!

posted over 5 years ago
A MyEpilepsyTeam Member said:

I was on it at the age of 16. Tegrital also. I was seizure free at 17. But remember we are all different.

posted over 5 years ago
A MyEpilepsyTeam Member said:

I have been on phenobarbital since 14 at start of puberty, it has been raised over the years as I am on old dear now ! They also put me on Epanutin that was a bad drug I was told, as I noticed my gums bled and then Epanutin made my teeth loose.
Phenobarbital seems to suit me so I have been on it for 40 plus years without any worries, (touches head and whistles) Dosage was put up higher but along came my Brain Bleed at 60's and then the fits got worse as they lowered my Phenobarbitone took me off Epanutin phew !! @Keppra replaced Epanutin and had a few fits after SAH. Sad as I went years without a seizure. xx Keep well all xx since then been a year without one and had 1 in January of 2017 xx Be well All and keep a smile close at hand when possible. Back on my phenobarbital and @Keppra lowered as it makes me tired xxx Tried to make myself younger it is over 50 years lol xxxxx

edited, originally posted over 5 years ago
A MyEpilepsyTeam Member said:

Yes I was on phenobarbital when I was younger up until my first neurologist took me off and put me on my current med's

posted over 5 years ago
A MyEpilepsyTeam Member said:

Actually, that is the medication we put my St. Bernard, Big Larry, on when he was diagnosed last year. It's a really old drug and they have to keep a close eye on your liver as it can be damaged by this drug if it's not closely monitored.

posted over 5 years ago
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