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30 Minute Seizure
A MyEpilepsyTeam Member asked a question 💭

I am a 33 yr old woman. Who had a seizure disorder when i was a child. Stopped at 13. Diagnosed with epilepsy at 25. Been on a bunch of different meds to control my seizures. Aptiom seemed to be keeping them in check. I had 2 seizures on it. Under 3 mins
Until 5 days ago. I was packing for a weekend away with my boyfriend. Then suddenly days later I woke up in the hospital with a EEG on and no recollection of the past 3 days. I spent another 2 days in the hospital recovering.

From what i am… read more

posted August 23, 2016
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A MyEpilepsyTeam Member

your body might be accepting your meds differently now. I know after a year or so sometimes my meds need to be adjust because all of a sudden my body has decided its taking too much or not enough. ever changing bodies cause ever changing med dosages. so maybe that?

posted August 23, 2016
A MyEpilepsyTeam Member

Sounds like you were in what is called status epileptic. I have been in this state twice in my life and woke up on a ventilator both times. It seems to me that your body has developed a tolerance to the Aptiom. This is usually the case with any medication I take for an extended period of time. Your doctor will probably, if they haven't already, increase your dose or add another medication to your regimen. I am currently taking 2 -800mg Aptiom twice a day, so I know that your dose could be increased. I'm sorry you are going through this. I know it's really terrifying to have to face our mortality in such an aggressive and unpredictable manner. I hope it helps just knowing I understand that feeling very well.

posted February 2, 2017

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