Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Catamenial Epilepsy And The Removal Of Ovaries

Catamenial Epilepsy And The Removal Of Ovaries

I am a 41 year old woman who has refractory epilepsy which all began when I slipped in the bath in 2001 and hit my head which resulted in me having bilateral temporal lobe sclerosis. Anyway, I now suffer from all types of seizures during ovulation and menstruation which are uncontrollable. I was recently seen by a different specialist who wants me to have a monthly injection called Prostap for 6 months to stop my periods. If my seizures improve they then want to remove my ovaries. I am very… read more

A MyEpilepsyTeam Member said:

Hi, well I am still suffering with catamenial epilepsy and my neurologist decided against that route because he didn't feel that it would help my particular case. He did initially send me to another specialist in respect of investigating what could help but the only suggestion he had was to give me a hysterectomy. My neurologist was quite angry with this as he said it was very risky because my condition could get worse by inducing my menopause. How strange that they are all men! lol

posted over 5 years ago
A MyEpilepsyTeam Member said:

The only time I did not have seizures was when I breastfed my baby and stopped all medicine because the doctors did not want the medicine to get in the milk and get in my baby! I had no seizures until I stopped nursing!

posted almost 6 years ago
A MyEpilepsyTeam Member said:

Doctors seem to be overly happy removing women's ovaries. Take it easy with that.

posted almost 6 years ago
A MyEpilepsyTeam Member said:

I had already gone through menopause prior to extreme seizures and it's typical to take hormones. I didn't take hormones.

posted over 4 years ago
A MyEpilepsyTeam Member said:

I had my ovaries removed 3 months ago and it has helped a lot! I am in surgical menopause now, experiencing some hot flashes, insomnia, and other symptoms but as I was working with catamenial epilepsy as well, my grand mal seizures around my spike days are now small auras which only last five minutes. These include a little drooling, wanting to reach for something and then lying down because my head feels heavy. After this I wake up and am fine. So I am anxiously waiting as time goes on and the excess estrogen leaves that these auras might disappear altogether as I've been told 90% of the estrogen comes from ovaries which I no longer have :)

posted over 4 years ago
Already a Member? Log in