I am a 41 year old woman who has refractory epilepsy which all began when I slipped in the bath in 2001 and hit my head which resulted in me having bilateral temporal lobe sclerosis. Anyway, I now suffer from all types of seizures during ovulation and menstruation which are uncontrollable. I was recently seen by a different specialist who wants me to have a monthly injection called Prostap for 6 months to stop my periods. If my seizures improve they then want to remove my ovaries. I am very… read more
Hi, well I am still suffering with catamenial epilepsy and my neurologist decided against that route because he didn't feel that it would help my particular case. He did initially send me to another specialist in respect of investigating what could help but the only suggestion he had was to give me a hysterectomy. My neurologist was quite angry with this as he said it was very risky because my condition could get worse by inducing my menopause. How strange that they are all men! lol
The only time I did not have seizures was when I breastfed my baby and stopped all medicine because the doctors did not want the medicine to get in the milk and get in my baby! I had no seizures until I stopped nursing!
Doctors seem to be overly happy removing women's ovaries. Take it easy with that.
Hello. I was initially having seizures while only having my period. I also had fibroid tumors. Because of this, I did not know these were seizures. I thought I was just having blackouts..... I was recently diagnosed. I found this video extremely helpful with my issues and coming to understand them.
https://youtu.be/5c-hLSTl42s
Hopefully this helps you too....
I had already gone through menopause prior to extreme seizures and it's typical to take hormones. I didn't take hormones.