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A MyEpilepsyTeam Member asked a question 💭

Has anyone had all the usual tests done EEG etc and no epileptiform activity was found at all??

posted June 3, 2016
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A MyEpilepsyTeam Member

I've had the MRI, EEG & EKG multiple times, a few times right after having a seizure because I was already in the hospital from having a seizure, but nothing was ever found in all the testings.

posted June 5, 2016
A MyEpilepsyTeam Member

Not to worry, I have read that a large majority of seizure disorder does not show on EEGS and 50 % cannot be explained. The other 50 may be psychiatric based.

posted June 4, 2016
A MyEpilepsyTeam Member

Lastly the EEG is archaic and only penetrates 1/4 inch inside.
Doc says I'm describing simple partial seizures very exactly and my wife was able to capture a seizure on the I phone and show him a breakthrough generalized seizure. I was able to find an epileptologist/ Nuerosurgeon. He's been able to get me 75% seizure free this year. 7 months no seizures, just minor simple partials, and they are down as well.

posted June 4, 2016
A MyEpilepsyTeam Member

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posted December 1, 2016
A MyEpilepsyTeam Member

Hey my husband has had all the test done...MRI several times, EEG several times, CT several times and they can't find anything that's causing his either....VERY FRUSTRATING!!!! We do know he has sleep apnea...we thought the CPAP machine would be the fix but no it wasn't... he takes three different medications and pray everyday that he doesn't have any.....feel free to email me or call me if you want my number email me and I'll send it to you! I would love to try to help encourage you in anyway!!!! 😊

posted December 1, 2016

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