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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Dementia

Dementia

I wish I could, just once try to write a post on here without losing the post before I'm finished. I'm learning to be brief and get it posted. Found out this week that I have dementia. 54 seemed old to me until I got this diagnosis, now I just feel too young for this. The seizures have apparently won, but I did fight them. He says since my Granny never forgot who people were, that I probably won't either, that's good. He said since she lost touch with reality, I probably will. Please… read more

A MyEpilepsyTeam Member said:

Thanks. I've started labeling pictures, with stories, just in case. I've also started a journal, including my wishes for the future.

posted over 6 years ago
A MyEpilepsyTeam Member said:

I have had Seizures since the age of 8 I am now 56
though I have not been diagnosised with Dementia
but my mother-inlaw she has Alzheimer be for it got to
bad we sat down and made several memory books
full of pictures with dates and names
it helps her now a lot she forgets who some people and
places are the book make her happy

posted over 6 years ago
A MyEpilepsyTeam Member said:

There are some things that can help. Seizures over a long period can cause dementia and so can brain surgery. I have frontal lobe dementia since my surgery. I have learned that many things help. Vitamin supplements, almonds, coconut, games and puzzles, reading and activities that require concentration or strategy, talking to yourself out loud, repetition, lists and routine, and sleep. Over the last 16 years I have seen my dementia come to a halt. My short term memory is damaged but I have not gotten worse. I have gotten better about some things I thot I never would. I have been told that I am a high risk candidate for Alzheimer's too bc of my surgery but I know I can beat the odds if my improvement over a dementia do has come so far. The biggest thing I have on my side is grace. I believe in the power of prayer.

posted over 6 years ago
A MyEpilepsyTeam Member said:

So sorry to hear but I do agree, you should probably go see another dr.Good luck. We will be thinking of you...

posted over 6 years ago
A MyEpilepsyTeam Member said:

99 doctors 99 diagnosis. Sounds to me like your meds are messing with your short term. Go see another doctor tell him nothing about what this doctor has said and see what you find out you may be surprised. The meds we take for this demon with which we live can be its own demon. I was on antibiotics for months to treat prostatitis those antibiotics left me with plantarfacietus only to find out that vimpat can cause prostate problems when I seen a different doctor. And most ufologists don't even know about the problem vimpat can cause. You have to remember the cold but true fact most of them are in it for the money don't expect them to care you are nothing but the next bill to most. You have to care for you. Peace.

posted over 6 years ago
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