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What Aura's Do You Experience?

What Aura's Do You Experience?

Hi all,

I don't write on here much, but I read a lot! I am writing an article for my next paper and I'm going to write about Aura's; I was wondering, what aura's do you experience? I usually base my columns on my own experience, but I know there are sooooo many different experiences for everyone, so I'd like to make it more of a variety. So, what do you feel before a seizure?

Em

A MyEpilepsyTeam Member said:

I once described my auras to my boys when they were 12 and 6 like this:
"You know how Spider-man has spidey senses and they tingle when something bad's about to happen, well, that how mommy feels when she has an aura".
They completely understood, lol.
Its like a tingly feeling all over like I am hyper-sensitive to sound, light, u name it oh and lets not forget the sick to my stomach feeling. Its sucks but I'm grateful that I hv a built in warning sysyemand that my kids now think that I'm a super hero ;*)

posted about 6 years ago
A MyEpilepsyTeam Member said:

I have complex partial seizures and the auras that I experience is I start seeing things in like the inside of a kaladeoscope and then it happens until I blackout and I go through my seizure.

posted over 6 years ago
A MyEpilepsyTeam Member said:

Hello I have noticed I get a deep sense of a very strong smell I believe to be sulfur like. Not that I have smelled sulfur but that's what comes to mind. Is this normal or what have you read and what do you understand about the aura?

posted over 6 years ago
A MyEpilepsyTeam Member said:

I find auras extremely useful as I can tell someone I am going to have a seizure hours in advance. Although, when I try and explain my feelings of aura to a non sufferer they don't seem to have a clue and confuse it will a natural feeling of panic.

I will be speaking with somebody or watching tv and the story wont be understood as well as if my brain is not taking in anything. It is a feeling that is very hard to describe but as an epileptic can be recognised straight away! The seizure itself is kicked off by a feeling of je ma vous where I feel like i've been or done something before yet feels very unfamiliar and I then get a strong nauseated feeling in my tummy which gets worse and worse. I begin to get very disorientated and am unable to speak in any sense and get very panicky. Sometimes this can be the extent of my seizure as I have been able to explain my partner (afterwards) how to reassure me to bring me out of it. If I am reassured of the day, month, year and what I am doing that day, for some reason I am able to stop myself from panicking and therefore "travelling deeper" in to a seizure.

edited, originally posted about 6 years ago
A MyEpilepsyTeam Member said:

My auras start with a rising in my stomach like going down a rollercoaster. I'll start looking around and realize that nothing feels familiar to me. If you were to ask me where I was I could tell you "this is my house" but even though everything looks the same it feels like someone dropped me into a unfamiliar place that I've never been before (jamais vu is the technical term). Then I black out and I have a seizure. The aura it's self is only about 6 seconds

posted about 6 years ago
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