Eric,
That sounds like a seizure to Me... Next time You go to see Your Neurologist, explain what You do.....

Mmmmmmmmm intresting now you have got me thinking because sometimes its like i can actually hear the blood pumping through my head.
its a weird thing,
its not actually in my ears but within the skull and i kinda feel/hear every pump of my heart beat but in my skull
ive never linked this to my headaches or mini episodes
i would also like to see and hear others thoughts on this

Yeah the head aches are a big downside to my symptoms too, theres nothing i can do its like some one is inside my skull with a sledgehammer repeatedly pinging (not banging its more like when someone does that odd ping noise and it REALlY grates on your nerves but its constant/over n over again) at certain spots,
always in the same blooming spots too (ive actually been able to sit and define/draw the areas of pain for my specialist to see
tiger balm rubbed on the temples does help or smelling lavender oils or fresh lavender

I get headaches all the time, the medicine doesn't help at all for me. I usually go to my room turn lights off turn on music and sometimes that helps I don't know why but it does

Some days I wake up with a very strong headache ,I call them my hangover headaches. After about 4-5 hours it will go away....slowly...