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Thank u so much. My son just has no motivation to search on his own yet he's so unhappy at his present job. I wish he would get involved in this group. He needs to socialize more and make friends
What meds is c he on ?
I'm getting ready to start taking Onfi and wanted to know what anyone else has experienced when taking it.
Onfi was the miracle drug for me. I tried every drug out there and have a VNS. It’s especially beneficial for partial complex seizures. I haven’t had a seizure in over 3 years since started taking… read more
Right before I had my brain surgery in October 1994, I was taken off all medications in hopes I would have a seizure (so they could locate where the seizures were coming from). The exact opposite… read more
A full moon makes my puppy kind of crazy which = a lack of sleep = which does tend to increase absent seizures (is that still the term? this stuff has changed so much over the last 2 decades. )
I ahve been on Keppra for nearly three months and the nausea is worse than ever.
I am a 33 yr old woman. Who had a seizure disorder when i was a child. Stopped at 13. Diagnosed with epilepsy at 25. Been on a bunch of different meds to control my seizures. Aptiom seemed to be keeping them in check. I had 2 seizures on it. Under 3 mins
Until 5 days ago. I was packing for a weekend away with my boyfriend. Then suddenly days later I woke up in the hospital with a EEG on and no recollection of the past 3 days. I spent another 2 days in the hospital recovering.
From what i am… read more
Sounds like you were in what is called status epileptic. I have been in this state twice in my life and woke up on a ventilator both times. It seems to me that your body has developed a tolerance to… read more
My Dr said that the best treatment for Me is going to be radiation, so my questions are about the side effects and any advice about before and after
Well I'll be praying for you but they already did all of those tests and when they found the area the zooming in on that part of the MRI and found a small lass too deep for surgery so they said the… read more
Anyone having success with anti-depression? I've been on lamotrigine for 18 months and, if I take too much I get toxic (strangest experience) . I can live with that to avoid seizures but the worst part is depression. I've tried escitalipram, sertraline, and imipramine. All of them caused seizures. Too bad, because the imipramine worked really well but only for 3-4 days.
I've read that topiraamate is a better AED that is also better for depression than lamotrigine. Any experiences?
look into Lexapro. I take lots of pills that can cause both anxiety and depression and Lexapro keeps me level
I will be having a sleep deprived EEG this week...anyone mind sharing their experience with this? I hear that most EEGs come back normal even with epilepsy? Thank you for sharing your experience, strength and hope with me.
Has anyone ever heard not to take medication that makes you sleepy before a EEG?