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Holding On

Holding On

My current treatment is working of limactal and neurontin much better than tegretol and neurontin previously, but I have been experiencing that feeling of "here it comes",which is better than surprise blackouts,although I have been experiencing the onset and holding on for all its worth. Will that go away or does my dose have to go up. I just want it to all stop.

A MyEpilepsyTeam Member said:

Hi Travis, I hope all is well for you today. I too am the gabapentine at this time for no reason according to my new neurologist. I have been on them for 20 years by my old one that considered it an epilepsy drug. New one said it's a pain pill and will be phased out once I stabilize on limactal,as well as paxil 20mg.

The auras scare the crap out of me bringing on the fear of "here it comes", but I am terrified of coming to on the ground never known it was coming or to get down right away. The blackouts are worse I think.

posted over 6 years ago
A MyEpilepsyTeam Member said:

I became more nervous when the pre-cursor/aura's went away. That seemed to happen around when I started Keppra. Before I would have a 5-10 second warning before a seizure would hit.
I'm on the gabapentin but not for seizures, for nerve pains.

edited, originally posted over 6 years ago
A MyEpilepsyTeam Member said:

I on Lamictal an was neuronton and was tegrital if have up all honestly I would ask you doctor about zoning ran that's they replaced my neuron tin with so they wouldn't have to up the dosage

edited, originally posted over 6 years ago
A MyEpilepsyTeam Member said:

I am currently on limictal 150mg twice a day have been on it for 13yrs and I do get signs and feels before having one and It does freak me out and I got emotional over it but to me it's a part of life the only thing is keep taking your medication and every day I want you to put your foot down and remember epilepsy is NOT in control of you. YOU are in control of it. Hope this advice is helpful and remember your not alone we are here to help each so keep strong x

posted over 6 years ago
A MyEpilepsyTeam Member said:

Thank you. The hardest part is understanding and being understood.

posted over 6 years ago
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