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They Diagnosed Me With Generalised Epilepsy

They Diagnosed Me With Generalised Epilepsy

Hi they my Dr's are still questioning my Epilepsy, yet today they just started me on Epilim Sodium Valproate 200 mg to be increased to 400 mg they gave me 100 of Epilim 200 mg per tab I have been on Keppra & Lamotragen now on Diazepam and Epilim. What shall I do they are keeping me on Epilim until they see me next I still say that I have Generalised Epilepsy yet they still questioning it do I need to have a massive seizure that bashes in my face before the… read more

A MyEpilepsyTeam Member said:

Gale, they are switching medications. They all have side effects. I have been taking lamictal for years. I am lightheaded and tired. I put up with it. It effects everyday living. I have to live a more sedative life style.
If I don't, You will be more stressed about what to do! You know your body and what you can handle. Speak up, call. Decrease meds. But going through to many drugs you really don't no what drug is helping or giving you side effects.
Do you have medical insurance, go see an epilogist at a good hospital. I go to the university of PA.
I've been on all seizure meds. None of them ever controled my seizures completely. That's why I had surgery ask questions. Write them down and take family or friend to appointments! It's a must. I learned. It's you body! Speak up. Hope this helps you. I am here to vent anytime😊

posted over 4 years ago
A MyEpilepsyTeam Member said:

I would ask a lot of questions also. If you are not satisified with the answer then find a different Dr. that will listen to you. We have gone through three Neurologists before we found a good fit for my son. Best of luck on your journey.

posted over 4 years ago
A MyEpilepsyTeam Member said:

I have partial complex seizures, they only last 5 seconds. I can have them in clusters Ask what kind of seizures I have. Ask a lot of questions to you Doctors

posted over 4 years ago
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