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Can Someone Explain This To Me Please?
A MyEpilepsyTeam Member asked a question 💭

I have been having spells of uncontrolled stuttering and memory lapses that feel like deja vu. I do not even know how to explain it. I get that sinking feeling like after I seize but this only lasts for a few minutes. But it happens all through out the day. I'm scared to tell anyone because they may think I'm crazy by the way I explain the feeling. But the best way I can explain is this. If you ever seen the matrix which I imagine most of you have. I can be walking or sitting and it seems like… read more

posted September 1, 2015
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A MyEpilepsyTeam Member

You are NOT stupid at all!! We all have strange and unique auras before and strange feelings after our seizures. For years I would get an awful burning smell before a major convulsive seizure. That led to panic attacks anytime I smelled something burning. I pray things get better for you. Please don't think you are crazy and definitely NOT stupid. Best!

posted September 1, 2015
A MyEpilepsyTeam Member

Joshua , when you mention about the world spinning, or things seem to be going in slo- mo or fast forwards and so on. Does all that happen before you seizure? My hunch is , if that it so , then you may be having an Aura or a prewarning signal that your spell is approaching. Try not feel back or discomfort . This is going to be a difficult lifestyle to live . That's for all of us w/ epilepsy.. I myself have had this since I was 1- 2 yrs old. I've had many spells at home , in the public, big concerts, sports events, and even family get together so. I know there are many people who don't understand Epilepsy, and many freak out , others just give you a weird stare down , like I'm the weirdo. But I don't care . I control my life w/ many obsticals of course, but I control it the best I possibly can. I will not let epilepsy WIN. And sure I do have my days of feeling depressed at times . But I also try and fight my way out , so I can get my life back in my control not Epilepsy. You , we all need to try and do the same . Some people have had this disorder longer than others , so it may be harder or easier for that person. Sometimes it doesn't matter. Many people get depressed , even after living w/ it for so long.

posted September 6, 2015
A MyEpilepsyTeam Member

You are not stupid. People have different feelings when they have seizures. If people don't understand your problem it is most of the time that they don't care. Take care of yourself.

posted September 2, 2015
A MyEpilepsyTeam Member

Don't be like that. You can go and do things like other people. Don't be ashamed because there is nothing you can do about it.

posted September 6, 2015
A MyEpilepsyTeam Member

OMG you nailed how i feel daily, I usually just keep myself locked away til i can be "normal" again. this is why I no longer socialize like i use to.

posted September 4, 2015

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