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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Any Experience With A Neuro Pace Implant. Somewhat New, But My Epileptologist Say They Are Much Better Than VNS.

Has Anyone Had Any Experience With A Neuro Pace Implant. Somewhat New, But My Epileptologist Say They Are Much Better Than VNS.

A MyEpilepsyTeam Member said:

I will have the RNS implant surgery next week. I'll let you know. I have generalized partials coming from temporal lobe and hippocampus. I have had seizures for 7 years and have been through most meds available. That's one reason I guess I qualify.
Thank you for the input. Wish me luck and keep me in your thoughts.
M

posted almost 7 years ago
A MyEpilepsyTeam Member said:

Mine got worse too, but they seem to be getting better now. It takes a long time but it’s worth the wait

posted about 4 years ago
A MyEpilepsyTeam Member said:

I've had my Neuropace for a little over a year. My doc and the Neuropace tech have tweaked it about 4 times. When I say "tweaked" I mean changing the current or voltage output of the RNS to try to stop the seizures. It seems to have changed the type of seizures I have. I was stiffening up and falling over (if I was standing). Now I am mostly just crumbling loosely to the floor.

posted about 4 years ago
A MyEpilepsyTeam Member said:

I have an NeuroPace (VNS wasn't for me due to the loci of the seizures) that was implanted last July, 2016. It was turned on in October, 2016. I've had seizures for 37+ years.
Prior to surgery, medications did not do enough to stop the seizures which, at one time, were 40-50 per week in my younger days. My doctor says I am still having seizures but the NeuroPace is "zapping" them. That being said, there have been times that I have thought I had a seizure (had a few moments of fog afterward) but nothing in comparison to what I used to experience. I am grateful for the NeuroPace, my surgeons, and epileptologist for being there.

posted over 5 years ago
A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member I was just wondering how things went with your RNS implant and if it's been working for you? I'll be getting mine implanted next month

posted about 6 years ago
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