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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
11118 questions
Is It Bad To Color Hair? I Want To Do Mine So Bad. But Some Have Said That It’s Not Good For People Who Are Epileptic.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

DO U is what I say it doesn’t matter what others tend to think is safe or bad to do be you or do what u wanna do.

posted 1 day ago
My Daughter Is Having Onfi Added To Her Daily Meds. 5mg Once A Day. Anybody Had A Good Experience With This.
A MyEpilepsyTeam Member asked a question 💭

the physical dependency and development of tolerance worries me ….. looking for some positive experienced

A MyEpilepsyTeam Member

Thank you for your insights Laurie, its very helpful!

posted 22 hours ago
My True Feelings Of My Epilepsy Team.
A MyEpilepsyTeam Member asked a question 💭

Joining my Epilepsy Team
made a change to my life
Making friends + talking
Helps me cope with strife
I give help and support 🙏
To help when they feel fear
By giving advice or Idea's
You can ask a question
To help being a Epileptic
Get lots of hugs or help
Giving each other tips. XX

A MyEpilepsyTeam Member

I agree with you all, this is where we all understand each other, thanks for all your hugs and support we get and give everyone everyday, 💜

posted 1 day ago
In Your Personal Opinion, What Relaxes Most During The Day?
A MyEpilepsyTeam Member asked a question 💭

I find my girlfriend and dog are the two most calming influences in my life

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member . It’s not so much doing the things I do , it’s more what activities, help you.
You don’t have to have the same things as I.

posted 2 days ago
Does Anyone Feel That The Solar Flares Happening Lately Are Affecting Them?
A MyEpilepsyTeam Member asked a question 💭

I’m having a bit more aura/seizure activity lately and wondering if they could be connected.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member . Thank you. It s not worth for me getting upset .

posted 2 days ago
How Many Of You All Had To Give Up Driving?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I spent almost 15 years not being able to drive. Finally, I had my brain surgery. I had to fight to get the license back. I have now been driving for about seven
years.

posted 3 days ago
They Have Switched My Daughters Prescription From Trileptal To Zonisade And We’re Weaning Her Off Of The Trieptal A
A MyEpilepsyTeam Member asked a question 💭

And today she’s had nonstop seizures. We are on the fifth week of eight has anyone else experienced this when they switch medication’s or these medication’s?

A MyEpilepsyTeam Member

I had that happen when my neurologist tried to wean me off of my Phenobarbital. At the time I was taking 180 mgs Phenobarbital at bedtime( 3 60 mg pills, bedtime only), We started decreasing it from… read more

posted 2 days ago
Does Anyone See A Psychologist That Specializes In Epilepsy? My Dr Referred Me To One And We Did Not Click At All.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Would someone share a recommendation?

posted 3 days ago
Does Epilepsy Have Any Notable Adverse Effects Other Than Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Bruce When a seizure starts it interrupts the conscious mind so can't function to be able to speak move etc. Feels like we're crazy to think but can't speak to put into words. Then the seizure passes… read more

posted 3 days ago
What Sounds Are Your Biggest Triggers I Find That Mine Are Random
A MyEpilepsyTeam Member asked a question 💭

Mine can be from music to a tv commercial to the sound of a running toilet 🫠

A MyEpilepsyTeam Member

I know my seizures went from hour's in my youth to about 45 seconds a episode now

posted 2 days ago